Tuesday, October 25, 2011

Many faces of MAZ

I had to take Jack back to the doctor today.
I REALLY did not want to take him.
I REALLY did not want to have to answer all the same questions.
I REALLY did not want to do what we already did with Max for four months.

But....because of his "hard to breathe" complaints....I did not want to let it go and it end up being pneumonia or something.

The room has a giant mirror on one wall. The doctor always knocks and opens the door slowly. This causes the doctor to look at our reflection in the mirror and us look at him through the mirror, when we greet him. All the doctors do it. It is strange and comical to me.


The doctor slowly opens the door with a polite smile on his face. Then he sees Jack in the mirror.
His face changes.
"Oh, Jack! You are still feeling bad?"

I am prepared to answer back all the "usual" with:
*no! you are wrong! there is no way that a kid with this illness could go to school or do regular activity!
*no! it is not a sinus infection that we should "wait another week"


BUT...the doctor popped my "frustration" bubble with


"WOW, he is so pale. He is definitely sick."
and then he sits in front of Jack with a worried/concerned look on his face....

I think we really need to do more tests to make sure it isn't......
....(list of things we ALREADY found Max did NOT have)

In his questioning and discussion, I was able to politely tell the doctor all that I was making Jack do while he feels bad and say..
"and there is no way that a kid with this illness could do regular activities and/or GO to school"

The doctor responded "ok...yea....no! I see that!"
"He needs to just be resting and staying hydrated...."

WHAT????

I felt my "angry me" taking over...
my hair began to rise...my eyes began to widen...
I think I might have even started to hover in mid air..


I was about to say "YOU TOLD ME TO MAKE HIM GO TO SCHOOL AND DO REGULAR ACTIVITIES EVEN WHEN I KNEW THAT HE COULDN'T AND IT WAS THE SAME THING MAX WENT THROUGH AND..."

Fortunately the doctor kept on talking about how sick Jack looked....things we needed to rule out EVEN THOUGH we ruled it out with Max...for safety with Jack, we needed to still test him.....

I slowly cooled back down.


We did the blood work.

We found that it is NOT anemia and next week the other test should also tell us what it is NOT......

I am fine if we never find what it is...as long as Jack gets well and they both never get it again!!

JUST DON'T TELL ME TO SEND THEM TO SCHOOL AND MAKE THEM DO REGULAR ACTIVITIES.....ever....... again...........ever!











5 comments:

  1. I wonder if Dr. Duggy Houser (sp.?) ever reads your blogs? I do understand your frustration. Love you, Dad

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  2. Have they been tested for PI? There is a giant poster in the Pittsburgh airport advertising a specialist here in PI for children.

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  3. Jack, We all want to "Kiss it and make it better.
    Hope you feel better soon.
    Aunt Delores

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  4. Darleen, if you are talking about Immune disorders...Max was tested for all of that and it was all fine. I don't know if immune deficiency would be the same testing...but I assume so...they said all immune was fine...

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